GALACTOSIALIDOSIS NETWORK
Unblocking Pathways to Treatment
Galactosialidosis: Ultra Rare, Metabolic Disorder
Who We Work With
ISMRD stands for International Society for Mannosidosis & Related Diseases. It advocates internationally for patients with diseases like galactosialidosis. There is strong partnership between Galactosialidosis Network and ISMRD.
ISMRD stands for International Society for Mannosidosis & Related Diseases. It advocates internationally for patients with diseases like galactosialidosis. There is strong partnership between Galactosialidosis Network and ISMRD.
Metabolic Support UK are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs.
Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible.
Metabolic Support UK are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs.
Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible.
Get in touch
If you would like more info or would like to collaborate with us to help find a treatment, please contact us using the details below:
You can also join the ISMRD mailing list.
International Directory of Clinicians and Scientists with experience of galactosialidosis are cited here, if you are a patient, parent or professional with an interest in galactosialidosis you may want to get in touch.
